Design evaluation of a physical-therapeutic exercise program for patients with amyotrophic lateral sclerosis/Evaluación de diseño de un programa de ejercicios físico-terapéuticos para pacientes con esclerosis lateral amiotrófica

Abstract

The lack of a methodological pathway specifically for the physical rehabilitation of patients with amyotrophic lateral sclerosis (ALS) that contributes to slowing their progression by attenuating symptoms, signs and complications that occur in the course of the disease justifies the development of a program of physical-therapeutic exercises for the rehabilitation of these patients. The purpose of this work is to evaluate the proposed programing in its design. The scientific proposal for a particular context, the Institute of Neurology and Neurosurgery, was evaluated through the expert criterion method. A group of people, not individuals themselves, took over as an expert. The expert selected was a 20 members multidisciplinary group of care for patients with neurodegenerative diseases of that institution, and for which five external specialists of maximum competence in the area of knowledge of Prophylactic and Therapeutic Physical Culture were invited. The participatory or consensus-seeking technique "Phillips 66" was used, which facilitated the participation of the large group by dividing it into subgroups to facilitate and order discussion. The design evaluation allowed confirmation that it is actually a program because it responds to the formal structure of what is considered as such and, and it is a good program for the context to which it is addressed, in addition to informing that the program qualifies to be evaluated in its development and results.